Monthly Archives: April 2012

Eye Gaze

This Video was done to gain awareness for MND (Motor Neurone Disease) and to promote ‘Eye Gaze’ to show people suffering with the disease that they can still be productive at their worst. Eye Gaze is a way for people … Continue reading

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31 Ways in 31 Days

Remember, ALS and MND are the same disease, the terms are used interchangeably but usually ALS in America and MND in the UK. May = ALS Awareness month in the US June = MND Awareness month in the UK

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An ALS Love Story

The Trailer to the ALS Love Story, very powerful and insightful. ‘There’s nothing that will take the wind out of your lungs quite like somebody telling you that one day your best friend will die, in one of the worst possible ways … Continue reading

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The truth behind the Secret Disease

Inspiring Documentary on the truth about ALS “One of the most powerful pieces of film I have ever seen! What a thoroughly awesome, incredible group of people. While I did not know Tim in some ways I feel- through the … Continue reading

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How Was I to Know?

A poem written by Natalie Fognani, a woman diagnosed with ALS 5 years ago was turned into a song by Lucas Hoge and Corey Barker. Natalie’s last wish was to have her poem put to music and Country Artist Lucas … Continue reading

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Another Turning Point a Fork Stuck in the Road

ALS UNDERGROUND “I AM A CAREGIVER FOR MY HUSBAND WHO HAS THE “NO CURE” DISEASE ALS, MND AKA LOU GEHRIG’S DISEASE. I AM NOT A NURSE OR MEDICALLY EDUCATED, I HAVE BEEN THROWN INTO THIS ROLE BECAUSE OF ALS & … Continue reading

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Twitter

If you’re on Twitter follow these four to keep up to date with the latest news on MND/ALS/LouGehrigs @laurayell  @liampdwyer @MNDAssoc @mndresearch Thank you

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Emma Berry Goodman, Aged 17, died of Motor Neurone Disease

The family and friends of Emma Berry Goodman were devastated when she became the youngest person in Britain to die of the deadly degenerative condition Motor Neurone Disease. As the first anniversary of the 17-year-old’s tragic death approaches, a charity … Continue reading

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ALS motor neurons made easy?

For more than 150 years, ALS has been recognized by experts as a motor neuron disease. But scientists still remain unsure why these cells are especially vulnerable to destruction in people with ALS or why they ultimately fail during the course of … Continue reading

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In Memory of William Tyler

Rothley Park Golf Club raised a massive £19166.76 in aid of William Tyler a beloved Husband, Father and Friend, who was diagnosed with Motor Neurone Disease during his year as captain at the club. May he Rest In Peace

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