Wristbands

Unfortunately we are completely sold out of wristbands until further notice. A massive thanks to everyone that has been buying them, we’ve raised a phenomenal amount of money for MND which hopefully will help towards a cure for the horrific disease.

There have been some positive discoveries lately, and hopefully these can now be researched and turned into cures. Also thank you to everyone that participated in the Ice bucket challenge nearly two years ago since that huge sums of money that have been raised have been primarily from this viral life-saver.

Feel free to get in touch on the blog of any MND events that you may be hosting or attending.

We’re on the right path, hopefully the journey won’t be too long.

New genetic discoveries tell us more about what causes MND – Part 2 — MND Research Blog

Two sets of MND genetic results were published yesterday. One of these results was about the importance of a new gene called NEK1. The second highlighted the role of gene C21orf2 in MND – we wrote an article about this yesterday. Both sets of results were published in the prestigious journal Nature Genetics. What are […]

via New genetic discoveries tell us more about what causes MND – Part 2 — MND Research Blog

ALS Ice Bucket Challenge

Take a look at #TheRealALSChallenge

Have a to, share it and spread the word

#ALSIceBucketChallenge

The Real ALS Challenge

I challenge you to watch it and take it – share it and educate those who are informed about the disease. With the global media focused on ALS, now is a better time than any to do your bit for MND/ALS.

Click the link to watch the video – it’s only short.

The Real ALS Challenge

Motor Neurone Disease Wristbands / MND Wristbands

We’ve had a number of requests for MND wristbands either directly from the blog or via the Facebook page.

 

I’m currently away for a prolonged period (returning circa July 2015) with limited access to email/blog/facebook – the best thing to do is email Liz – liz@mycarquotes.co.uk who will be able to send some out to you right away.

 

Any problems don’t hesitate to get in touch with myself on lyell1607@gmail.com but apologies for any delay in my response.

 

Keep up the great fundraising and awareness spreading – whether that involves soaking yourself in ice water, doing a cake sale or selling MND wristbands it’s all for a great cause!

Laura

 

 

ALS Ice Bucket Challenge

http://hotair.com/archives/2014/08/20/finally-george-w-bush-take-the-als-ice-bucket-challenge/

The ALS Ice Bucket Challenge has cause a 1000% spike in ALS donations. 

And for your entertainment – here are the twenty best videos so far according to the telegraph:

http://www.telegraph.co.uk/men/the-filter/virals/11040688/Ice-bucket-challenge-20-of-the-best-videos-so-far.html

To be clear ALS/MND is an awful, debilitating disease that is worthy of donor dollars. It essentially triggers a slow paralysis in sufferers by causing the nerve cells to stop working. It’s also a death sentence. From the time of diagnosis, most people live only two to five years. There’s no cure, and, more than 70 years after baseball star Lou Gehrig drew attention to the cause, scientists still don’t know what brings it on.

Here are a few more links which are interesting and can enlighten you on the challenge:

 http://www.forbes.com/sites/matthewherper/2014/08/19/think-the-ice-bucket-challenge-is-stupid-youre-wrong/

http://www.laughtocuremnd.com/ice-bucket-challenge.html

Raising awareness is what I set out to do with this blog and if you’re reading this now, I challenge you not to pour ice water over your head, but to share this link or this blog with at least 5 others. Awareness is key to fighting the disease and it’s unbelivable how much help the press and media attention have given to this horrific disease. 

And if you’d like another challenge, see the post below: A mile for ALS. But I warn you, you have to be extremely strong to do that challenge. 

Helen Carter’s Story

 

 

Helen Carter (33) and three friends, Lauren Morrison (24), Emily Morrison (22) and Rebecca Crossley (31) from Newcastle upon Tyne, have been working so hard since January to raise as much money as possible for The Motor Neurone Disease Association.

 

We chose this charity as it is close to all our hearts as back in September 2013 Lauren, Emily and Rebecca`s dad Bob Morrison was diagnosed with MND. At the time his daughter Lauren was travelling Australia and flew straight home to be with her family but was sent back to finish her travels by her dad, she is now home for good.

 

I have known Bob since I was a child and grew up with his daughters and seeing how much this illness has affected him and his family’s life’s, inspired me to do something to help Bob and others who are affected by this terrible illness. That’s when I got together with Bob`s daughters and our fundraising started.

 

We have already had the following charity events:-

 

February 2014- Bucket collection at the Coxlodge Club Gosforth we raised £120

 

May 2014- Bag pack at Tesco North shields we raised £464

 

June 2014- Charity night at The Windsor Kingston Park we have raised £1610.35 but there is still more money to be added to that amount as money still coming in. We also run a weekly beer draw at The Windsor to raise extra funds, this is a big hit the regulars. Our charity night has been our biggest success so far with the help of local people and businesses making donations. We had so much donated that we were able to have a raffle, auction and tombola. Some of the prizes were a signed Newcastle United shirt, signed Falcons top, trampoline, BBQ, a night’s stay with dinner and breakfast at the Hilton and lots more. I also had the help of four brave lads who volunteered to be waxed on the night to raise extra money.

 

But our best donation, which we organised for Bob himself to keep was a personalised letter and signed football shirt from Rangers Football Club. Bob is absolutely over the moon with this as he is a big Rangers supporter, we presented this to Bob as a surprise on the charity night.

 

We also have some more ideas that we are working on at the minute to raise more money for our MNDA fund which we are hoping will be just as successful as the events we have already had.

 

All of this is just the run up to our main charity event which is our skydive at Shotton Airfield, Peterlee on Saturday 12th July 2014. We have also raised sponsor money for this which is now in the 1000`s.

 

If anyone would like to sponsor us please follow this link it will take you to our charity page www.doitforcharity.com/HCarter. You can also find our group on face book charity skydive for Bob Morrison & The Motor Neurone Disease Association.

 

ANY DONATIONS ARE GREATLY APPRECIATED

By Helen.

World record bid charity match in memory of Karen

Two staff members at a Spalding sports centre are preparing to break sweat for charity in memory of an ex-champion swimmer.

 

Stuart Cunnington (22) and Lewis Pearson (25), who both work at Castle Sports Complex in Albion Street, are to compete across a badminton court on April 6 and hope to raise at least £3,000 for the Motor Neurone Disease (MND) Association.

But it’s no ordinary game as the pair hope to set a new world record for the longest badminton singles match ever played in tribute to former Castle staff member Karen Sanderson who died of MND last July, aged 47.

Stuart said: “We were having a knock-around at work and then Lewis and I decided to do something for charity.

“We wanted to do it for something with a bit of significance and when we spoke to some of the other staff, they told us about Karen who worked here for a number of years.

“She was bubbly, outgoing and a lot of people were fond of her, so we’re trying to set a world record and raise some awareness of MND as well.”

Karen won a haul of medals and trophies as a member of South Lincolnshire Competitive Swimming Club in Spalding before going on to work at Castle Sports Complex for 24 years.

Her husband, Martin Plane, is helping Stuart and Lewis with their world record attempt by setting up an online page for people to make donations.

Lewis said: “We’re hoping to play badminton at the Castle for more than 24 hours and some of the staff have agreed to stay overnight and support us.

“Stuart and I are both following a strict regime of dieting and we are playing badminton regularly in a build-up to the day.”

The world record is currently held by Dutch pair William ten Zijthoff and Johan Drenthen who played for 24 hours, five minutes and 32 seconds in August 2009, raising more than £2,000 for the Foundation for Handicapped Sports.

To sponsor Stuart and Lewis, go to http://www.mndassociation.org or call 01775 762178.

Read more at http://www.spaldingtoday.co.uk/news/business/business-news/world-record-bid-charity-match-in-memory-of-karen-1-5832274

 

Memorial Website: http://karen.plane.muchloved.com/

Asbestos Awareness Week

I received this email the other day from a lady called Heather – and I wanted to share it with you as she is trying to do what we are doing for MND, for Mesothelioma.

 

“Hi there!

My name is Heather Von St. James and I am reaching out to you today because I would like to share something special with you. I found your blog while searching for people who’ve posted about awareness efforts they have participated in or support. I noticed that you’ve done so and I was wondering if you’d be willing to help me with a cause that means a lot to me!

Eight years ago, I was diagnosed with mesothelioma; a rare and deadly cancer caused by exposure to asbestos. I had just given birth to our daughter Lily, and was only given 15 months to live. After a life saving surgery that included the removal of my left lung, I made it my life’s mission to educate people about this deadly disease and it’s cause.

Asbestos Awareness Week is just around the corner and I was hoping you would be willing to help spread the word. Asbestos has been used for many applications in the past including building materials in homes, office buildings, and naval ships. It is STILL not banned in the United States today.

This year, I am asking bloggers to participate and spread the word about Asbestos Awareness Week by being a Voice for the Victims. You can find my awareness page here: http://www.mesothelioma.com/heather/awareness/

I hope you will check it out and share it on your blog. From awareness grows hope.. Each voice could save a life!

Hope to hear from you,
Heather Von St. James
http://www.mesothelioma.com/heather/“

MND Wristbands – Another grateful buyer

The success of the wristbands continues – raising awareness and money for MND simultaneously!!