Another Turning Point a Fork Stuck in the Road

ALS UNDERGROUND

“I AM A CAREGIVER FOR MY HUSBAND WHO HAS THE “NO CURE” DISEASE ALS, MND AKA LOU GEHRIG’S DISEASE. I AM NOT A NURSE OR MEDICALLY EDUCATED, I HAVE BEEN THROWN INTO THIS ROLE BECAUSE OF ALS & I HAVE HAD TO LEARN FAST. I AM A WRITER OF NOTHING’S UNLESS YOU CARE OR WANT TO KNOW OR BE INFORMED ABOUT ALS.”

She writes about her troubles and the progression of her husband Don as the ALS/MND starts to work its way through his body.

“Like an Anaconda snake ALS suffocates it’s victims & remains elusive, so you wing it from the very start of diagnosis and battle ALS on a day by day process”. Don turned another fork in the road in his battle with ALS & it has taken me days to calm down enough to write about this. Taking the Rizoule (aka Rilutek) seems to have agreed with him, this is lucky because it only works with about 50% of patients that take it, it seems to have slowed the fast track of symptoms he has been experiencing however I come to find there is NO magic pill to take for ALS. Don has had little symptoms of weakness in his hands/fingers & then low and behold the other day he says to me “can youopen this pepsi bottle” “can you open this water bottle” , my heart sunk and I’m like “no please not already!! this is another fork in the road, but we will make the best of what we have and totally embrace life each day.

Another turning point, a fork stuck in the road

Time grabs you by the wrist, directs you where to go

So make the best of this test, and don’t ask why

It’s not a question, but a lesson learned in time

It’s something unpredictable, but in the end it’s right.

I hope you had the time of your life.

 

So take the photographs, and still frames in your mind

Hang it on a shelf in good health and good time

Tattoos of memories and dead skin on trial

For what it’s worth it was worth all the while

It’s something unpredictable, but in the end it’s right.

I hope you had the time of your life.

 

It’s something unpredictable, but in the end it’s right.

I hope you had the time of your life.

It’s something unpredictable, but in the end it’s right.

I hope you had the time of your life

GREEN DAY 1996

Taken From: http://alsdiseasealifestruggle.blogspot.co.uk/

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