Former Edmonton County School teacher Lindy Jones writes book ‘The Voice in My Head is Perfect’ about her terminal illness Motor Neurone Disease

A former English teacher diagnosed with motor neurone disease has written a book about her experiences.

Lindy Jones, who was head of English at Edmonton County School until 2005, is due to release the book called The Voice in My Head is Perfect through Amazon on Friday, November 30.

The 57-year-old, from Livingstone Road in Palmers Green, was told she had the terminal illness in September 2010 after she noticed her speech was slurred.

Mrs Jones, who is married to husband Gareth and has sons aged 22 and 24, can no longer speak as a result of her condition and has to rely on writing to communicate.

She wrote: “I have tried to make the book humorous as well as grim and in fact motor neurone disease becomes a woman called Mildred.

“So it is not your normal serious account of a vile disease more about my experiences not being able to communicate and facing my own demise after being healthy for my entire adult life.

“The book describes the shock of no longer being a professional independent head of English but a terminally ill patient.”

Lindy Jones and her book The Voice in My Head is Perfect

The progressive disease attacks nerves in the brain and spinal cord and can gradually affect how patients walk, talk, eat, drink and breathe.

The mother-of-two added: “Not being able to speak is terrible and i have found it very hard to adjust. I want people to understand what it feels like to have a degenerative, terminal illness.”

The academic taught in Enfield for 14 years before becoming head of English in a comprehensive school in Hertfordshire.

She writes about the North London Hospice in the book, a charity which supplies her with a counsellor and a nurse.

Taken from:


“Not a misery memoir, but a painfully brilliant exploration of what it means when a perfectly healthy, normal, lively woman is told that she has motor neurone disease, an incurable, terminal illness. Full of dark black humour.” Cathy McMullan

“Fabulous book, halfway thru already. Thank you for making me appreciate what i have, this mad world sometimes makes us lose our way!” Chris Mancini

“Just got my copy today and read (at random) the bit about being cold called while you’re dying of MND. Incredibly funny and moving. To all my friends on Facebook who are training to be doctors and also all the ones who aren’t – you should buy and read this book. You’ll be glad you did.” Donald Lush

You can get your copy from:

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