Tony’s story is horrific like many others, the way the doctors in his clip describe the disease is especially horrific.
‘Their mental faculties are retained, however they can see themselves wasting away…’
It’s the alarming truth of the matter and people should not have to go through that suffering. Knowing that there is no cure. Knowing they will have to watch the deterioration.
The comments at the bottom of the video are extremely sad, many memories about loved ones and their stories are shared including comments from people who have the disease themselves.